Because of all the time that CJ needed to spend out of the DOC band due to a rash it's looking like he's going to need a second one. I think we have the rash under control. It's not perfect, but it's not all scabby looking and over half of his head anymore. They have put some mole skin inside which really seems to have helped with the rash. There is improvement, but they think this current band is only going to fit him for another month. And because of all the time he spent out of it they think he'll need a second band. Now my concern of course is if the insurance will pay for a second band. This thing costs $3600 which I most definitely do not have. Honestly, I'm in no position to pay any portion of it. The insurance hasn't even completely paid for this band. They said they would work something out though. Not entirely sure what that means, but because of how rare it is for a child to have as severe of a rash as CJ has had in this they seem to think they can get us a second band. I suppose we will cross that bridge when we come to it though. I am frustrated at how long it took them to finally put some sort of covering on the band since I had asked for that from the moment the rash popped up and they told me they couldn't do it. Then suddenly they could. Now unfortunately it's looking like he'll still have the band on for his 1st birthday. I really was hoping to avoid the long trip during the winter months with slick icy roads, but that looks like it's not going to happen either. But at least there is improvement in the shape of his head. We are getting somewhere. I did ask today if we get a second band if they would put the mole skin on it right away and they told me no. I thought that was strange since so far this seems to be the only thing that is protecting his little head. They told me they would probably just monitor him closer in the beginning. So it looks like our weekly trips down there are going to continue. I have to say I don't know what I would do without my insurance paying for this treatment and reimbursing my gas to drive down there. I guess I am very fortunate.
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